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Originally posted by Brenda:

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and in for today. Sunny out. Lousy morning at mah jong, couldn't go out at all. Just missed all 4 flowers. So disappointing. Just adds to the terrible afternoon I had. Also had a small seizure yesterday and the only one who noticed was the head lady that I was playing with. She called my name several times to get me back. I wasn't gone very long and I have everything written down.

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Oh dear.

You've mentioned a few things that made me wonder if your seizures were adequately controlled. Even things like a hand jerking could be symptomatic. Just let your neuro know. Keep him/her updated every time something happens, otherwise they don't know what's going on. One option is to add another med but if I were your neuro Id do a sleeping EEG (can be done at home) and get a CAT scan. Both are relatively cheap.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Neuro has been told about the hand shaking and it is a side effect of the new med.

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I am deciding whether or not to tell about this one. When I told him about the ones that have occurred here at home, he always asks for witnesses. I live alone. So, do I go into his office and tell him or not. I am as I said deciding on that.

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Originally posted by SIGNYM:

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Originally posted by Brenda:

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and in for today. Sunny out. Lousy morning at mah jong, couldn't go out at all. Just missed all 4 flowers. So disappointing. Just adds to the terrible afternoon I had. Also had a small seizure yesterday and the only one who noticed was the head lady that I was playing with. She called my name several times to get me back. I wasn't gone very long and I have everything written down.

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Oh dear.

You've mentioned a few things that made me wonder if your seizures were adequately controlled. Even things like a hand jerking could be symptomatic. Just let your neuro know. Keep him/her updated every time something happens, otherwise they don't know what's going on. One option is to add another med but if I were your neuro Id do a sleeping EEG (can be done at home) and get a CAT scan. Both are relatively cheap.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Neuro has been told about the hand shaking and it is a side effect of the new med.

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Hand shaking is one thing. Jerking is a different thing. Only you know which you have.

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I am deciding whether or not to tell about this one. When I told him about the ones that have occurred here at home, he always asks for witnesses. I live alone. So, do I go into his office and tell him or not. I am as I said deciding on that.

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Why would you not tell him? You have a witness!
It seems stupid that he would keep asking you for witnesses but I know why he does it. A lot can be determined from what happens in the first few moments. Do the eyes deviate? If so, to what side? Does the head turn? Does person make chewing motions, fumble purposelessly with their fingers? Do they go pale? Pupils widen? Or do they just go blank? All diagnostic.
Is there an easier way to get in touch with Dr? Over here they're very big on portals, where people can log in, see their test results ( and scare themselves to death), message doctors, request refills, pay bills etc. Also, they like telemed a lot, scheduled appointments by video app. But that's no good if Dr needs to do an exam.


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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Back and in for today. Sunny out. Lousy morning at mah jong, couldn't go out at all. Just missed all 4 flowers. So disappointing. Just adds to the terrible afternoon I had. Also had a small seizure yesterday and the only one who noticed was the head lady that I was playing with. She called my name several times to get me back. I wasn't gone very long and I have everything written down.

SIGNY: Oh dear.

You've mentioned a few things that made me wonder if your seizures were adequately controlled. Even things like a hand jerking could be symptomatic. Just let your neuro know. Keep him/her updated every time something happens, otherwise they don't know what's going on. One option is to add another med but if I were your neuro Id do a sleeping EEG (can be done at home) and get a CAT scan. Both are relatively cheap.

BRENDA: Neuro has been told about the hand shaking and it is a side effect of the new med.

SIGNY: Hand shaking is one thing. Jerking is a different thing. Only you know which you have.

BRENDA: I am deciding whether or not to tell about this one. When I told him about the ones that have occurred here at home, he always asks for witnesses. I live alone. So, do I go into his office and tell him or not. I am as I said deciding on that.

SIGNY: Why would you not tell him? You have a witness!
It seems stupid that he would keep asking you for witnesses but I know why he does it. A lot can be determined from what happens in the first few moments. Do the eyes deviate? If so, to what side? Does the head turn? Does person make chewing motions, fumble purposelessly with their fingers? Do they go pale? Pupils widen? Or do they just go blank? All diagnostic.
Is there an easier way to get in touch with Dr? Over here they're very big on portals, where people can log in, see their test results ( and scare themselves to death), message doctors, request refills, pay bills etc. Also, they like telemed a lot, scheduled appointments by video app. But that's no good if Dr needs to do an exam.



BRENDA:It is shaking and as I have said before it is not all the time.
SIG, I do know why he asks for witnesses. Yes, there are ways to contact docs up here on the computer but with this thing I can't do any of that. No apps like that on this computer.

SIGNY: You don't need an app for portal communication, it's all handled on their end. All you need to do is go to their portal website and create an account.

You DO need an app for telemed (my healthcare providers use their own, but many use Zoom or something similar) so no help there.

BRENDA: I know I should make an appointment to go in but this comes down to me hating me poked and prodded at. Will decide. But the lady who saw me said I had just stopped.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and in for today. Sunny out. Lousy morning at mah jong, couldn't go out at all. Just missed all 4 flowers. So disappointing. Just adds to the terrible afternoon I had. Also had a small seizure yesterday and the only one who noticed was the head lady that I was playing with. She called my name several times to get me back. I wasn't gone very long and I have everything written down.

SIGNY: Oh dear.

You've mentioned a few things that made me wonder if your seizures were adequately controlled. Even things like a hand jerking could be symptomatic. Just let your neuro know. Keep him/her updated every time something happens, otherwise they don't know what's going on. One option is to add another med but if I were your neuro Id do a sleeping EEG (can be done at home) and get a CAT scan. Both are relatively cheap.

BRENDA: Neuro has been told about the hand shaking and it is a side effect of the new med.

SIGNY: Hand shaking is one thing. Jerking is a different thing. Only you know which you have.

BRENDA: I am deciding whether or not to tell about this one. When I told him about the ones that have occurred here at home, he always asks for witnesses. I live alone. So, do I go into his office and tell him or not. I am as I said deciding on that.

SIGNY: Why would you not tell him? You have a witness!
It seems stupid that he would keep asking you for witnesses but I know why he does it. A lot can be determined from what happens in the first few moments. Do the eyes deviate? If so, to what side? Does the head turn? Does person make chewing motions, fumble purposelessly with their fingers? Do they go pale? Pupils widen? Or do they just go blank? All diagnostic.
Is there an easier way to get in touch with Dr? Over here they're very big on portals, where people can log in, see their test results ( and scare themselves to death), message doctors, request refills, pay bills etc. Also, they like telemed a lot, scheduled appointments by video app. But that's no good if Dr needs to do an exam.



BRENDA:It is shaking and as I have said before it is not all the time.
SIG, I do know why he asks for witnesses. Yes, there are ways to contact docs up here on the computer but with this thing I can't do any of that. No apps like that on this computer.

SIGNY: You don't need an app for portal communication, it's all handled on their end. All you need to do is go to their portal website and create an account.

You DO need an app for telemed (my healthcare providers use their own, but many use Zoom or something similar) so no help there.

BRENDA: I know I should make an appointment to go in but this comes down to me hating me poked and prodded at. Will decide. But the lady who saw me said I had just stopped.

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If your seziures start as focal, they sure generalize awfully fast.

You posted that your hand jerked when you were typing so I assumed that's what the problem was.

I know what you mean about too many Dr appts. I've been referred to orthopedic surgery for tumors (probably benign) found in my leg ... I'll probably go to that one .... but also for bunion and skin conditions that I'm going to skip. Still, I think you need to keep your neuro informed.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Off to work tomorrow in the rain supposedly. Have to see.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Off to work tomorrow in the rain supposedly. Have to see.

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I hope it stays dry for you!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Well, no afternoon mah jong for me but I got other things to do.

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Originally posted by SIGNYM:
Hey, IDK what happened but my kidney function is the best it's been in three years, my sed rate is finally normal, and my cancer marker - altho a tad above what they consider to be normal - is lower (better) than before.

Maybe the med is working?

I'll believe it if it's the same next blood test.


Now all I gotta do is figure out how to fix my knees and my cholesterol.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Well, no afternoon mah jong for me but I got other things to do.

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Oh, too bad.
It seems to me that even a bad day at mah jong is better than no mah jong at all, right?

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

It would be but I got a few things to do as I said. Just hope I remember them.

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Originally posted by Brenda:
Got back a while. Forgot a couple of things that I can do tomorrow after mah jong and lunch.

Also oh squee, everyone in the building is being asked about a parking spot in the underground. In some ways the new management is starting up new files. Useless exercise if you ask me. All they are going to find out is I have car, any one who comes and sees me parks out front for a bit. My boss usually drops me at the garage when I have to come back in the dark. I also go and meet people. People also walk to see me and sometimes my boss comes over on her bike. And that is all folks.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Got back a while. Forgot a couple of things that I can do tomorrow after mah jong and lunch.

Also oh squee, everyone in the building is being asked about a parking spot in the underground. In some ways the new management is starting up new files. Useless exercise if you ask me. All they are going to find out is I have car, any one who comes and sees me parks out front for a bit. My boss usually drops me at the garage when I have to come back in the dark. I also go and meet people. People also walk to see me and sometimes my boss comes over on her bike. And that is all folks.

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If there are enough parking spaces for everyone, maybe you'll get one anyway. Would be nice for visitors, or if someone delivers something by vehicle.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Back in and done. Was going to do an inside chore but don't really have the energy. Didn't sleep well last night for some reason.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back in and done. Was going to do an inside chore but don't really have the energy. Didn't sleep well last night for some reason.

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I guess I'm not the only one that that happens to.

It seems to me my "get up and go“ got up and went. Again. I think part of the problem is my knees, which got very suddenly very bad a couple of months ago. And not just knees but insteps, shoulders, base of thumbs ... all of the places arthritis can affect. I used to do an exercise standing up from, and sitting back down on a chair, 20X twice a day to exercise my thigh muscles, as well as 45 degree pushups. My knees and shoulders can't tolerate that anymore. All I can manage is VERY partial 6“ 'squats’, and I dread walking the dog.

Also, I accompany every Dr visit and medical test. In May that meant 14 visits including Ortho for hubby's hand and cardiac ablation, a zillion (it seems) tests for me. The previous month was 7, the month before that was 10
That takes a chunk out of every month! It feels overwhelming. But fortunately that all throttles back to about 1-2 per month for the foreseeable future. Maybe I can recoup some energy there.
Whew!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Back and done for today.

Also asked pharmacy why I have to at times keep going back for the rest of my seizure meds. Answer they don't keep enough of them on hand because not many people who take them use that pharmacy.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and done for today.

Also asked pharmacy why I have to at times keep going back for the rest of my seizure meds. Answer they don't keep enough of them on hand because not many people who take them use that pharmacy.

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Levetiracetam? That's SUCH a common med! What would it cost them to maintain an inventory of 3000 pills? Stupid pharmacy!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and done for today.

Also asked pharmacy why I have to at times keep going back for the rest of my seizure meds. Answer they don't keep enough of them on hand because not many people who take them use that pharmacy.

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Levetiracetam? That's SUCH a common med! What would it cost them to maintain an inventory of 3000 pills? Stupid pharmacy!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Well, that is what she told me. They keep more thyroid and blood pressure meds in stock than seizure meds. Either one I take.

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Originally posted by SIGNYM:

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Originally posted by Brenda:

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Back and done for today.

Also asked pharmacy why I have to at times keep going back for the rest of my seizure meds. Answer they don't keep enough of them on hand because not many people who take them use that pharmacy.

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Levetiracetam? That's SUCH a common med! What would it cost them to maintain an inventory of 3000 pills? Stupid pharmacy!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Well, that is what she told me. They keep more thyroid and blood pressure meds in stock than seizure meds. Either one I take.

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Will they dispense 3 months at a time? Maybe you wouldn't have to go back so often.

3 month refills are common around here. In fact, I have to ask SPECIFICALLY for one-month quants, that way my family refill list is the same every month.

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by Brenda:
Just a call a bit ago for afternoon mah jong tomorrow.

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Originally posted by SIGNYM:

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Originally posted by Brenda:
Just a call a bit ago for afternoon mah jong tomorrow.

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As always, bon chance!

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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by SIGNYM:
Maybe your luck changes today.

FWIW I generally don't like games of luck. Too frustrating!

*****
Yesterday we had a surprise thundershower. It didn't last more thsn 5 minutes ... it was a fast-moving storm that came from ... SURPRISE! ... the northeast!

At least it washed the dust off the plants, solar panels and everything.


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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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