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Originally posted by Wishimay:
You forgot to add ego stroke with a submissive posture.

Yeah, I know that.

I've tried logic. I've tried emotional. I dunno if it'll work, but next time I'll see if sticking my head up my ass sounds like a familiar language to them

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I asked the doctor if he'd ever been in a state of shock and he said no. I said I have been experiencing the sensations of it this morning for THREE HOURS. He just shrugged.

I got some different meds from him and that was about it. Have decided to write Mayo Clinic and see how much the genetic test is. I'm done with these idiots.

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Originally posted by SIGNYM:

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I asked the doctor if he'd ever been in a state of shock and he said no. I said I have been experiencing the sensations of it this morning for THREE HOURS. He just shrugged.

I got some different meds from him and that was about it. Have decided to write Mayo Clinic and see how much the genetic test is. I'm done with these idiots.

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Good idea.

Doctors are taught "When you hear hoofbeats, thinks horses not zebras", and that works GREAT! .... 90% of the time.

However.

Zebras exist.

I may have mentioned it before, but I recall rather plainly our daughter's ped neuro walking me though her differential diagnosis. She had a list of six or seven things, I don't recall all of them, but she went thru them one by like, like this...

It could be atypical migraines, but it doesn't look like that. (cross off)
It could be Lennox Gastaut, but it doesn't look like that. (cross off)
It could be infantile spasms, but it doesn't look like that. (cross off)
It could be ______, but that's too rare. (cross off)

Well, the thing that she crossed off because it was "too rare" was exactly what it was.

In order to bird-dog something rare, you need a TRULY caring doctor .... one who is willing to go back to the books and do some learning (and good luck on finding one of those!) .... or you need a university-affiliated medical center which specializes in rare diseases and syndromes, where doctors LOOK for zebras because then they can write a paper!

And, when you finally hook up with such a center - what KIKI said.

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Originally posted by Wishimay:


I'm fairly certain I either have a SERIOUS valve problem or I have Polycythemia Vera. My RBC, Hemoglobin and Hematocrit were off the charts.
I've never felt this horrific in my entire life.

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